resources
The resources below were included to help connect those affected by HDFN to understanding communities and reliable information, and to assist in finding support programs and services.
Janssen has a relationship with the organizations and is not responsible for the support they provide.
| Name | About | Phone | Website |
|---|---|---|---|
| Allo Hope Foundation | An organization that provides information about alloimmunization, promotes education, and offers access to resources and other relevant information | allohopefoundation.org | |
| Maternal Alloimmunization Foundation | A patient advocacy organization dedicated to helping families affected by maternal alloimmunization and HDFN through education, patient support, healthcare improvement, and advocacy | (630) 669-2292 | alloimmunization.org |
| Global Genes | An organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally, united by a determination to support them and provide what they need to take action and thrive | (949) 248-7273 | globalgenes.org |
| National Organization for Rare Disorders (NORD) | A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services | (617) 249-7300 | rarediseases.org |
| NOWINCLUDED | Acclinate’s NOWINCLUDED community is a groundbreaking platform empowering people of color to make better-informed health decisions by fostering community discussions on different health issues | nowincluded.com |
HDFN Information
| Title | Organization | Description | Link |
|---|---|---|---|
| Hemolytic Disease of the Fetus and Newborn | National Library of Medicine | Learn about HDFN and its history, epidemiology, and more. | ncbi.nlm.nih.gov/books/NBK557423/ |